Development of a Draft Core Set of Domains for Measuring Shared Decision Making in Osteoarthritis: An OMERACT Working Group on Shared Decision Making
Identifieur interne : 002F37 ( Main/Exploration ); précédent : 002F36; suivant : 002F38Development of a Draft Core Set of Domains for Measuring Shared Decision Making in Osteoarthritis: An OMERACT Working Group on Shared Decision Making
Auteurs : Karine Toupin April ; Jennifer Barton ; Liana Fraenkel ; Linda Li ; Viviane Grandpierre ; Francis Guillemin ; Tamara Rader ; Dawn Stacey ; France Légaré ; Janet Jull ; Jennifer Petkovic ; Marieke Scholte Voshaar ; Vivian Welch ; Anne Lyddiatt ; Cathie Hofstetter ; Maarten De Wit ; Lyn March ; Tanya Meade ; Robin Christensen ; Cécile Gaujoux-Viala ; Maria E. Suarez-Almazor ; Annelies Boonen ; Christoph Pohl ; Richard Martin ; Peter TugwellSource :
- The Journal of rheumatology [ 0315-162X ] ; 2015.
Descripteurs français
- KwdFr :
- Adulte d'âge moyen, Amérique du Nord, Arthrose (), Arthrose (diagnostic), Australie, Conférences de consensus comme sujet, Europe, Femelle, Guides de bonnes pratiques cliniques comme sujet, Humains, Mâle, Prise de décision, Rhumatologie (normes), Sujet âgé, Évaluation de résultat (soins), Évaluation des risques.
- MESH :
- diagnostic : Arthrose.
- normes : Rhumatologie.
- Adulte d'âge moyen, Amérique du Nord, Arthrose, Australie, Conférences de consensus comme sujet, Europe, Femelle, Guides de bonnes pratiques cliniques comme sujet, Humains, Mâle, Prise de décision, Sujet âgé, Évaluation de résultat (soins), Évaluation des risques.
- Wicri :
- geographic : Australie.
English descriptors
- KwdEn :
- MESH :
- geographic : Australia, Europe, North America.
- diagnosis : Osteoarthritis.
- standards : Rheumatology.
- therapy : Osteoarthritis.
- Aged, Consensus Development Conferences as Topic, Decision Making, Female, Humans, Male, Middle Aged, Outcome Assessment (Health Care), Practice Guidelines as Topic, Risk Assessment.
Abstract
Despite the importance of shared decision making for delivering patient-centred care in rheumatology, there is no consensus on how to measure its process and outcomes. The aim of this OMERACT working group is to determine the core set of domains for measuring shared decision making in intervention studies in adults with osteoarthritis (OA), from the perspective of patients, health professionals and researchers.
We followed the OMERACT Filter 2.0 to develop a draft core domain set, which consisted of: (i) forming an OMERACT working group; (ii) conducting a review of domains of shared decision making; and (iii) obtaining the opinions of stakeholders using a modified nominal group process held at a session activity at the OMERACT 2014 meeting.
26 stakeholders from Europe, North America and Australia, including 5 patient research partners, participated in the session activity. Participants identified the following domains for measuring shared decision making to be included as part of the Draft Core Set: 1) Identifying the decision; 2) Exchanging Information; 3) Clarifying views; 4) Deliberating; 5) Making the decision; 6) Putting the decision into practice; and 7) Assessing the impact of the decision. Contextual factors were also suggested.
We propose a Draft Core Set of shared decision making domains for OA intervention research studies. Next steps include a workshop at OMERACT 2016 to reach consensus on these proposed domains in the wider OMERACT group, as well as detail sub-domains and assess instruments to develop a Core Outcome Measurement Set.
Url:
DOI: 10.3899/jrheum.141205
PubMed: 25877502
PubMed Central: 4607553
Affiliations:
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Le document en format XML
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<sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">Development of a Draft Core Set of Domains for Measuring Shared Decision Making in Osteoarthritis: An OMERACT Working Group on Shared Decision Making</title>
<author><name sortKey="Toupin April, Karine" sort="Toupin April, Karine" uniqKey="Toupin April K" first="Karine" last="Toupin April">Karine Toupin April</name>
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<author><name sortKey="Barton, Jennifer" sort="Barton, Jennifer" uniqKey="Barton J" first="Jennifer" last="Barton">Jennifer Barton</name>
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<author><name sortKey="Fraenkel, Liana" sort="Fraenkel, Liana" uniqKey="Fraenkel L" first="Liana" last="Fraenkel">Liana Fraenkel</name>
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<author><name sortKey="Li, Linda" sort="Li, Linda" uniqKey="Li L" first="Linda" last="Li">Linda Li</name>
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<author><name sortKey="Grandpierre, Viviane" sort="Grandpierre, Viviane" uniqKey="Grandpierre V" first="Viviane" last="Grandpierre">Viviane Grandpierre</name>
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<author><name sortKey="Guillemin, Francis" sort="Guillemin, Francis" uniqKey="Guillemin F" first="Francis" last="Guillemin">Francis Guillemin</name>
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<author><name sortKey="Stacey, Dawn" sort="Stacey, Dawn" uniqKey="Stacey D" first="Dawn" last="Stacey">Dawn Stacey</name>
</author>
<author><name sortKey="Legare, France" sort="Legare, France" uniqKey="Legare F" first="France" last="Légaré">France Légaré</name>
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<author><name sortKey="Jull, Janet" sort="Jull, Janet" uniqKey="Jull J" first="Janet" last="Jull">Janet Jull</name>
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<author><name sortKey="Petkovic, Jennifer" sort="Petkovic, Jennifer" uniqKey="Petkovic J" first="Jennifer" last="Petkovic">Jennifer Petkovic</name>
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<author><name sortKey="Scholte Voshaar, Marieke" sort="Scholte Voshaar, Marieke" uniqKey="Scholte Voshaar M" first="Marieke" last="Scholte Voshaar">Marieke Scholte Voshaar</name>
</author>
<author><name sortKey="Welch, Vivian" sort="Welch, Vivian" uniqKey="Welch V" first="Vivian" last="Welch">Vivian Welch</name>
</author>
<author><name sortKey="Lyddiatt, Anne" sort="Lyddiatt, Anne" uniqKey="Lyddiatt A" first="Anne" last="Lyddiatt">Anne Lyddiatt</name>
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<author><name sortKey="Hofstetter, Cathie" sort="Hofstetter, Cathie" uniqKey="Hofstetter C" first="Cathie" last="Hofstetter">Cathie Hofstetter</name>
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<author><name sortKey="De Wit, Maarten" sort="De Wit, Maarten" uniqKey="De Wit M" first="Maarten" last="De Wit">Maarten De Wit</name>
</author>
<author><name sortKey="March, Lyn" sort="March, Lyn" uniqKey="March L" first="Lyn" last="March">Lyn March</name>
</author>
<author><name sortKey="Meade, Tanya" sort="Meade, Tanya" uniqKey="Meade T" first="Tanya" last="Meade">Tanya Meade</name>
</author>
<author><name sortKey="Christensen, Robin" sort="Christensen, Robin" uniqKey="Christensen R" first="Robin" last="Christensen">Robin Christensen</name>
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<author><name sortKey="Gaujoux Viala, Cecile" sort="Gaujoux Viala, Cecile" uniqKey="Gaujoux Viala C" first="Cécile" last="Gaujoux-Viala">Cécile Gaujoux-Viala</name>
</author>
<author><name sortKey="Suarez Almazor, Maria E" sort="Suarez Almazor, Maria E" uniqKey="Suarez Almazor M" first="Maria E." last="Suarez-Almazor">Maria E. Suarez-Almazor</name>
</author>
<author><name sortKey="Boonen, Annelies" sort="Boonen, Annelies" uniqKey="Boonen A" first="Annelies" last="Boonen">Annelies Boonen</name>
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<author><name sortKey="Pohl, Christoph" sort="Pohl, Christoph" uniqKey="Pohl C" first="Christoph" last="Pohl">Christoph Pohl</name>
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<author><name sortKey="Martin, Richard" sort="Martin, Richard" uniqKey="Martin R" first="Richard" last="Martin">Richard Martin</name>
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<series><title level="j">The Journal of rheumatology</title>
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<profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Aged</term>
<term>Australia</term>
<term>Consensus Development Conferences as Topic</term>
<term>Decision Making</term>
<term>Europe</term>
<term>Female</term>
<term>Humans</term>
<term>Male</term>
<term>Middle Aged</term>
<term>North America</term>
<term>Osteoarthritis (diagnosis)</term>
<term>Osteoarthritis (therapy)</term>
<term>Outcome Assessment (Health Care)</term>
<term>Practice Guidelines as Topic</term>
<term>Rheumatology (standards)</term>
<term>Risk Assessment</term>
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<keywords scheme="KwdFr" xml:lang="fr"><term>Adulte d'âge moyen</term>
<term>Amérique du Nord</term>
<term>Arthrose ()</term>
<term>Arthrose (diagnostic)</term>
<term>Australie</term>
<term>Conférences de consensus comme sujet</term>
<term>Europe</term>
<term>Femelle</term>
<term>Guides de bonnes pratiques cliniques comme sujet</term>
<term>Humains</term>
<term>Mâle</term>
<term>Prise de décision</term>
<term>Rhumatologie (normes)</term>
<term>Sujet âgé</term>
<term>Évaluation de résultat (soins)</term>
<term>Évaluation des risques</term>
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<keywords scheme="MESH" type="geographic" xml:lang="en"><term>Australia</term>
<term>Europe</term>
<term>North America</term>
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<keywords scheme="MESH" qualifier="diagnosis" xml:lang="en"><term>Osteoarthritis</term>
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<keywords scheme="MESH" qualifier="diagnostic" xml:lang="fr"><term>Arthrose</term>
</keywords>
<keywords scheme="MESH" qualifier="normes" xml:lang="fr"><term>Rhumatologie</term>
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<keywords scheme="MESH" qualifier="standards" xml:lang="en"><term>Rheumatology</term>
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<keywords scheme="MESH" qualifier="therapy" xml:lang="en"><term>Osteoarthritis</term>
</keywords>
<keywords scheme="MESH" xml:lang="en"><term>Aged</term>
<term>Consensus Development Conferences as Topic</term>
<term>Decision Making</term>
<term>Female</term>
<term>Humans</term>
<term>Male</term>
<term>Middle Aged</term>
<term>Outcome Assessment (Health Care)</term>
<term>Practice Guidelines as Topic</term>
<term>Risk Assessment</term>
</keywords>
<keywords scheme="MESH" xml:lang="fr"><term>Adulte d'âge moyen</term>
<term>Amérique du Nord</term>
<term>Arthrose</term>
<term>Australie</term>
<term>Conférences de consensus comme sujet</term>
<term>Europe</term>
<term>Femelle</term>
<term>Guides de bonnes pratiques cliniques comme sujet</term>
<term>Humains</term>
<term>Mâle</term>
<term>Prise de décision</term>
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<term>Évaluation de résultat (soins)</term>
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<front><div type="abstract" xml:lang="en"><sec id="S1"><title>Objective</title>
<p id="P1">Despite the importance of shared decision making for delivering patient-centred care in rheumatology, there is no consensus on how to measure its process and outcomes. The aim of this OMERACT working group is to determine the core set of domains for measuring shared decision making in intervention studies in adults with osteoarthritis (OA), from the perspective of patients, health professionals and researchers.</p>
</sec>
<sec id="S2"><title>Methods</title>
<p id="P2">We followed the OMERACT Filter 2.0 to develop a draft core domain set, which consisted of: (i) forming an OMERACT working group; (ii) conducting a review of domains of shared decision making; and (iii) obtaining the opinions of stakeholders using a modified nominal group process held at a session activity at the OMERACT 2014 meeting.</p>
</sec>
<sec id="S3"><title>Results</title>
<p id="P3">26 stakeholders from Europe, North America and Australia, including 5 patient research partners, participated in the session activity. Participants identified the following domains for measuring shared decision making to be included as part of the Draft Core Set: 1) Identifying the decision; 2) Exchanging Information; 3) Clarifying views; 4) Deliberating; 5) Making the decision; 6) Putting the decision into practice; and 7) Assessing the impact of the decision. Contextual factors were also suggested.</p>
</sec>
<sec id="S4"><title>Conclusion</title>
<p id="P4">We propose a Draft Core Set of shared decision making domains for OA intervention research studies. Next steps include a workshop at OMERACT 2016 to reach consensus on these proposed domains in the wider OMERACT group, as well as detail sub-domains and assess instruments to develop a Core Outcome Measurement Set.</p>
</sec>
</div>
</front>
</TEI>
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<name sortKey="Christensen, Robin" sort="Christensen, Robin" uniqKey="Christensen R" first="Robin" last="Christensen">Robin Christensen</name>
<name sortKey="De Wit, Maarten" sort="De Wit, Maarten" uniqKey="De Wit M" first="Maarten" last="De Wit">Maarten De Wit</name>
<name sortKey="Fraenkel, Liana" sort="Fraenkel, Liana" uniqKey="Fraenkel L" first="Liana" last="Fraenkel">Liana Fraenkel</name>
<name sortKey="Gaujoux Viala, Cecile" sort="Gaujoux Viala, Cecile" uniqKey="Gaujoux Viala C" first="Cécile" last="Gaujoux-Viala">Cécile Gaujoux-Viala</name>
<name sortKey="Grandpierre, Viviane" sort="Grandpierre, Viviane" uniqKey="Grandpierre V" first="Viviane" last="Grandpierre">Viviane Grandpierre</name>
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<name sortKey="Hofstetter, Cathie" sort="Hofstetter, Cathie" uniqKey="Hofstetter C" first="Cathie" last="Hofstetter">Cathie Hofstetter</name>
<name sortKey="Jull, Janet" sort="Jull, Janet" uniqKey="Jull J" first="Janet" last="Jull">Janet Jull</name>
<name sortKey="Legare, France" sort="Legare, France" uniqKey="Legare F" first="France" last="Légaré">France Légaré</name>
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<name sortKey="Meade, Tanya" sort="Meade, Tanya" uniqKey="Meade T" first="Tanya" last="Meade">Tanya Meade</name>
<name sortKey="Petkovic, Jennifer" sort="Petkovic, Jennifer" uniqKey="Petkovic J" first="Jennifer" last="Petkovic">Jennifer Petkovic</name>
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<name sortKey="Rader, Tamara" sort="Rader, Tamara" uniqKey="Rader T" first="Tamara" last="Rader">Tamara Rader</name>
<name sortKey="Scholte Voshaar, Marieke" sort="Scholte Voshaar, Marieke" uniqKey="Scholte Voshaar M" first="Marieke" last="Scholte Voshaar">Marieke Scholte Voshaar</name>
<name sortKey="Stacey, Dawn" sort="Stacey, Dawn" uniqKey="Stacey D" first="Dawn" last="Stacey">Dawn Stacey</name>
<name sortKey="Suarez Almazor, Maria E" sort="Suarez Almazor, Maria E" uniqKey="Suarez Almazor M" first="Maria E." last="Suarez-Almazor">Maria E. Suarez-Almazor</name>
<name sortKey="Toupin April, Karine" sort="Toupin April, Karine" uniqKey="Toupin April K" first="Karine" last="Toupin April">Karine Toupin April</name>
<name sortKey="Tugwell, Peter" sort="Tugwell, Peter" uniqKey="Tugwell P" first="Peter" last="Tugwell">Peter Tugwell</name>
<name sortKey="Welch, Vivian" sort="Welch, Vivian" uniqKey="Welch V" first="Vivian" last="Welch">Vivian Welch</name>
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