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Development of a Draft Core Set of Domains for Measuring Shared Decision Making in Osteoarthritis: An OMERACT Working Group on Shared Decision Making

Identifieur interne : 002F37 ( Main/Exploration ); précédent : 002F36; suivant : 002F38

Development of a Draft Core Set of Domains for Measuring Shared Decision Making in Osteoarthritis: An OMERACT Working Group on Shared Decision Making

Auteurs : Karine Toupin April ; Jennifer Barton ; Liana Fraenkel ; Linda Li ; Viviane Grandpierre ; Francis Guillemin ; Tamara Rader ; Dawn Stacey ; France Légaré ; Janet Jull ; Jennifer Petkovic ; Marieke Scholte Voshaar ; Vivian Welch ; Anne Lyddiatt ; Cathie Hofstetter ; Maarten De Wit ; Lyn March ; Tanya Meade ; Robin Christensen ; Cécile Gaujoux-Viala ; Maria E. Suarez-Almazor ; Annelies Boonen ; Christoph Pohl ; Richard Martin ; Peter Tugwell

Source :

RBID : PMC:4607553

Descripteurs français

English descriptors

Abstract

Objective

Despite the importance of shared decision making for delivering patient-centred care in rheumatology, there is no consensus on how to measure its process and outcomes. The aim of this OMERACT working group is to determine the core set of domains for measuring shared decision making in intervention studies in adults with osteoarthritis (OA), from the perspective of patients, health professionals and researchers.

Methods

We followed the OMERACT Filter 2.0 to develop a draft core domain set, which consisted of: (i) forming an OMERACT working group; (ii) conducting a review of domains of shared decision making; and (iii) obtaining the opinions of stakeholders using a modified nominal group process held at a session activity at the OMERACT 2014 meeting.

Results

26 stakeholders from Europe, North America and Australia, including 5 patient research partners, participated in the session activity. Participants identified the following domains for measuring shared decision making to be included as part of the Draft Core Set: 1) Identifying the decision; 2) Exchanging Information; 3) Clarifying views; 4) Deliberating; 5) Making the decision; 6) Putting the decision into practice; and 7) Assessing the impact of the decision. Contextual factors were also suggested.

Conclusion

We propose a Draft Core Set of shared decision making domains for OA intervention research studies. Next steps include a workshop at OMERACT 2016 to reach consensus on these proposed domains in the wider OMERACT group, as well as detail sub-domains and assess instruments to develop a Core Outcome Measurement Set.


Url:
DOI: 10.3899/jrheum.141205
PubMed: 25877502
PubMed Central: 4607553


Affiliations:


Links toward previous steps (curation, corpus...)


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<title xml:lang="en" level="a" type="main">Development of a Draft Core Set of Domains for Measuring Shared Decision Making in Osteoarthritis: An OMERACT Working Group on Shared Decision Making</title>
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<name sortKey="Suarez Almazor, Maria E" sort="Suarez Almazor, Maria E" uniqKey="Suarez Almazor M" first="Maria E." last="Suarez-Almazor">Maria E. Suarez-Almazor</name>
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<name sortKey="Boonen, Annelies" sort="Boonen, Annelies" uniqKey="Boonen A" first="Annelies" last="Boonen">Annelies Boonen</name>
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<term>Male</term>
<term>Middle Aged</term>
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<term>Decision Making</term>
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<term>Humans</term>
<term>Male</term>
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<term>Amérique du Nord</term>
<term>Arthrose</term>
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<term>Conférences de consensus comme sujet</term>
<term>Europe</term>
<term>Femelle</term>
<term>Guides de bonnes pratiques cliniques comme sujet</term>
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<term>Mâle</term>
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<title>Objective</title>
<p id="P1">Despite the importance of shared decision making for delivering patient-centred care in rheumatology, there is no consensus on how to measure its process and outcomes. The aim of this OMERACT working group is to determine the core set of domains for measuring shared decision making in intervention studies in adults with osteoarthritis (OA), from the perspective of patients, health professionals and researchers.</p>
</sec>
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<title>Methods</title>
<p id="P2">We followed the OMERACT Filter 2.0 to develop a draft core domain set, which consisted of: (i) forming an OMERACT working group; (ii) conducting a review of domains of shared decision making; and (iii) obtaining the opinions of stakeholders using a modified nominal group process held at a session activity at the OMERACT 2014 meeting.</p>
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<title>Results</title>
<p id="P3">26 stakeholders from Europe, North America and Australia, including 5 patient research partners, participated in the session activity. Participants identified the following domains for measuring shared decision making to be included as part of the Draft Core Set: 1) Identifying the decision; 2) Exchanging Information; 3) Clarifying views; 4) Deliberating; 5) Making the decision; 6) Putting the decision into practice; and 7) Assessing the impact of the decision. Contextual factors were also suggested.</p>
</sec>
<sec id="S4">
<title>Conclusion</title>
<p id="P4">We propose a Draft Core Set of shared decision making domains for OA intervention research studies. Next steps include a workshop at OMERACT 2016 to reach consensus on these proposed domains in the wider OMERACT group, as well as detail sub-domains and assess instruments to develop a Core Outcome Measurement Set.</p>
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<name sortKey="Suarez Almazor, Maria E" sort="Suarez Almazor, Maria E" uniqKey="Suarez Almazor M" first="Maria E." last="Suarez-Almazor">Maria E. Suarez-Almazor</name>
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